Children with special educational needs and disabled children

4in10 organised a coffee morning in February 2023 that was jointly hosted by staff and parents at Marjory Kinnon School in Hounslow. Rochelle McIntyre, the Family Support and Community Outreach Worker facilitated the discussion and had invited her colleague Jo Stacey, Assistant Head Teacher, Key Stage 2 and Staff Governor as well as a parent to provide first-hand experience.  

This mother shared her experiences as a single-parent and the challenges of caring for a child with autism. Throughout the group discussion, a few key costs were mentioned that demonstrate the challenge of parenting and educating children with a learning disability. These include:  

  • Changing dietary needs and specific food items being essential to meet the sensory needs of the child, these foods are often more expensive or difficult to predict and buy reduced  
  • Clothing and textures becoming uncomfortable leading to new purchases frequently 
  • High costs to attend a sensory appropriate gym, averaging £17.50 per visit which swallows up a high proportion of the Disability Living Allowance (DLA) that her son is entitled to 
  • Taxis across London for appointments as the underground is too overstimulating 
  • This parent shared that her son often strips off his clothes at home meaning its particularly important to keep the house warm enough, thus adding to the cost of utilities.  

The emotional side for parents was also highlighted. A parent in attendance explained that working part time and taking coursework all had to stop because it just became too overwhelming for her and exhausting to keep up. Even when she was able to access a personal assistant, there were still costs associated with the PA taking care of her son or taking him out and about that limited how much her son could do with her PA. Thus, it felt like there were always limitations and challenges as to how much help she could get because the costs keep adding up.  

Another parent of a child with autism shared her own experiences and emphasised that practical help is important, but the challenge of supporting and adjusting to the sensory needs of a growing child with autism is always there.  

At 4in10, we want to listen to these experiences and share them with those who make decisions that impact children and their parents. We want to highlight the financial and emotional challenges that parents face and the impossible situations that parents with low-incomes encounter when caring for a child with a special need or disability. If you have other thoughts or experiences that you’d like to share, please do get in touch so we can support growing more awareness and social action to advocate for better support of children with varying needs and financial situations.  


Research about young people designed by young people for young people

Reflections from Research and Learning Officer, Emily Barker, on an exciting new venture organised by one of our members and taking place across London.

Young Londoners Research Project  

For those interested in youth-led research, I’ve got something to share! I came across a brilliant series of projects that our member, Partnership for Young London, is coordinating along with Rocket Science and Young Harrow Foundation. A total of nine research projects are taking place thanks to these partners working with the Greater London Authority who has commissioned ‘a new programme that will fund and support young people, their youth or support workers and their youth organisations to research young people’s views.’  

Follow this link to learn more about the Young Researchers Programme and for a description of the nine exciting projects underway. The variety of projects speaks to the scope of creativity and talent of these young people. It’s a thrill to hear how passionate as well as thorough and insightful these young people are about putting in the work to develop new knowledge that will help improve the experiences of young Londoners. 

When young people are involved in evaluating and improving the services aimed at them, it can help increase the reach and impact of these services on those who need it most. Many of the projects consider what barriers exist for young people who need to access additional support. Making steps to improve young people’s lives is a key strategy in mitigating the impact , both immediate and long term, of child poverty.

I am especially looking forward to hearing about the findings of the research projects in spring 2023! I can’t wait to learn from their analysis! 

 

 


Newham Nurture roundtable

4in10 Manager Katherine reflects on the Newham Nurture roundtable event she attended this week

Earlier this week I had the great pleasure of attending an event that showcased and celebrated the work of the Newham Nurture project. Newham Nurture is a community partnership with NCT, Alternatives Trust, The Magpie Project and Compost London. The programme supports women through pregnancy and up to two years after birth from low income, migrant and marginalised backgrounds experiencing financial hardship and disadvantage. It does this by providing drop-in pregnancy sessions, Baby & Me sessions for mums with babies from newborn up to 2 years, peer support and counselling.

A few reflections…

The project shone out as an example of what good partnership working and co-production ought to be, but all too often isn’t. The women from the project steering group, many of whom also deliver its work as volunteers and staff members, spoke eloquently and movingly about their own experiences of struggling to access the support they needed as pregnant and new mothers, about how the partner organisations were a lifeline for them and how passionate they are about making sure that help is now available to other women who so desperately need it. It was also clear from the discussion that there was a high level of mutual respect between the project partners and local statutory services, with a clear acknowledgement that unless services really listen to and act on what women are telling them then they will remain inaccessible to many.

There is a lot for others to learn from the experience of the project. While Newham’s challenges may be distinctive, there is no doubt that in many other areas of London there are families who would benefit enormously from the support of a project like Newham Nurture. The experience of having a baby can be a daunting and isolating experience for any woman, and if you add to that experience of loss and trauma, very low income, insecure housing, language barriers and discrimination, then this is magnified many times. The event concluded with a powerful audio recording of women who come to Newham Nurture talking about it and what it meant to them. The message that came over loud and clear was that they valued the project not only for the accessible, practical advice and support it gave them but also a place where they and their children could come, feel welcomed and enjoy the friendship of others who have trod similar paths ahead of them. Compost London are evaluating the work and I look forward to reading and sharing their findings with all the other organisations in the 4in10 network so that they can learn from the excellent work that Newham Nurture has planted, grown and is now blossoming in their community.

While the overwhelming feeling I had on leaving the event was one of hope; gained from witnessing the deep commitment that the women who lead this programme have to supporting one and another and working tirelessly to improve the lives of their young children, it was also tinged with anger. Anger that the choices of our politicians are wreaking such damage on these families’ lives and withholding the resources needed to ensure their children’s rights to food, health and education. With no end to the cost-of-living crisis in sight and further cuts to services on the cards, it is alarming to think that the situation for these families will get worse. Drawing on the hope and belief that change is possible, as the project so clearly demonstrates, we must redouble our effort to challenge these systemic injustices and demand better for children and families.